Back in the good (?) 'ol days...
Most diabetic blogs and bloggers seems to come from the US. That's not so surprising. After all it is the birthplace of the internet, where there has been the most IT innovations and the largest English speaking country. However, for me it is also good to hear from someone living in Europe. Cassie from Belgium, I therefore appreciated your comments. And oh - also I am planning to move to Belgium this summer:) I will move to Leuven which is only half an hour from Brussels. I will attend the 12 month MBA programme at Vlerick Leuven Management School.Cassie also wrote some questions about doctors and how the remote services from a US Certified Diabetes Educator (CDE) works for me. I do have a doctor in Paris, but I use him only to write prescriptions. He is great at that;) He is also a likeable chap.
Doctors have (almost) always disappointed me when it comes to helping my diabetes. The only exception was some of the endicronologists I met when I lived in the US. It is a complicated disease/system to control, and the general doctors - and most specialists - I have been in contact with in my 26 years as a diabetic, have neither had the time nor the knowledge to help finetune a lifestyle of living with diabetes with insulin, carbs and exercise. It takes lots of time, energy and empathy from someone.
With a diabetes remote consulting service (Gary Scheiner and Integrated Diabetes), I feel I have someone that has the expertise, and that takes the time needed to do the finetuning. I also find empathy and understanding that I ususually do not see in non-diabetics. One example is the last endocrinologist I saw in Paris. He wanted to take my pump away and put me on lantus / humalog shots. Clearly, that is what *he* felt comfortable with. I felt comfortable dropping him, and the hospital (thank goodness I had a choice!)
The consultations with Integrated Diabetes happens once a month over the phone, and in addition I can email him logsheets or questions if I have something I want their feedback / input on. This adds another convenience: no time spent in waiting rooms. Oh man, do I have stories about that. I must have spent months in waiting rooms. The longest was in Norway back in the '80s. There we had no choice of doctors. The hospitals were socialist controlled - no freedom to choose either a hospital, nor a doctor. Independent doctors/hospitals were illegal, so there was no CDE equivalent. Doctors in the state hospital were semi-randomly assigned, which for me meant a new doctor at every visit. The wait was typically between 2 hours and 4 hours in order to meet a doctor for 10 minutes to half an hour. Oh well, at least it gave me a doctor's note to take off from school for the day. I'd simply arrive 2 hours late and with a book...

25 Comments:
Hi Skytor!
This is an interesting post - I think you've "hit the nail on the head" with how most docs don't have the time & knowledge to give the individual attention one may want.
I think that you leveraging the connectivity that the internet and phone provide to recruit the services of Gary shows a lot of motivation on your part - which is awesome. I plan on doing the same at some point myself.
I briefly looked at the logbook you posted earlier, and it looks like a useful format - especially the area to summarize the info below. I think that even just simply logging helps bring that stuff back into sharper focus. It still may not be the single priority in life (which it should not be), but maybe even on an unconscious level it's a little more "up there". Know what I mean?
Hi, it is me again - Chrissie in Brussels, Belgium. So you will be in Leuven during the summer. (Could you explain a little bit more what you are doing there. I have not been reading this, or any other blog very long. I am new to the whole thing.) It is so close to Brussels one could call it a suburb. Maybe we could arrange somehow to meet . I am new to blogging and I am worried about writing my email "anywhere". I might get junk and unwanted stuff.... How do I avoid that???
Pretty hand with this nice doctor in Paris who writes you the prescriptions! They have recently written that diabetics are still not adequately caring for their disiase. I think this is because even if you try really hard you often do not suceed. You blame yourzself and try to run away from the problem, pretend it doesn't exist. The worst is when doctors say "Yes, this can be fixed, just do that - an answer straight out of the text book. Often you have tried their suggestion and it hasn't worked. You give up and stop talking to them. or if you are persistent, and say no that doesn't work they do not believe you. Then the appointment ends, your time is up! It is better when they say - I don't really know what we should do..... but maybe we could try this instead. Thinking through a real solution takes often too much time.
Me again, but it is NOT Cassie, but Chrissie in Belgium. I forgot to say that in the last note!
Hi...I am actually living in Norway, married to a Norwegian. Gorgeous day in Oslo. I have had a tough time trying to find a doctor here who was willing to 'personalize' my diabetes. I finally did though (he's from Finnmark) and it has made a tremendous difference! In my journey, I have come to believe that no two diabetics are alike. It is very individual.
Anyway...just wanted to say hello!!
Ha det og har en fin dag!!
Hi, I'm so glad I ran into your blog. I just read that you are going to move to Leuven? I think you're going to love it, it's an awesome city, lots of students --because of the big college--, lots of things to do, ... I'm originally from Antwerp, Belgium. I've been living in the US since 2000 but all my friends and family still live there so I do go back quite often. Good luck with your d-life. I'll definitely put you in my bloggers list.
Interesting post. I agree with your post in that most doctors (endocrinologists) do not have sufficient time to spend with patients. As a result, diabetes nurse educators (known in the U.S. as CDEs) spend far more time with patients.
I suspect that care ranges not only from North America to Europe, but also varies considerably from country to country. I lived in Finland (Suomi) and found the care there was generally better than in the U.S. Germany seems to have a large number of type 1 patients on insulin pumps, yet the Nordic Countries do not have many in spite of having the highest incidence of type 1 in the world. When I asked people in Finland who had type 1 about using a pump, I was told that it was offered as an option, but many doctors do not necessarily encourage patients to use these devices and patients are told that the same control could be attained without a pump. That may be true, but pumps make life easier for many patients.
Anyway, I enjoyed reading your posts. It provides an interesting perspective that we occasionally lose sight of when we are not exposed to the global nature of this condition, and how people manage it in different locations.
Thanks again (merci, danke, gracias, kiitos, tak ...)
Well done!
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Just to let you know, that Australia actually has all the current pumps that you do in the USA. We have the Minimed Paradigm 522/722 and CGMS, and the Animas and Deltec Cozmo pumps.
When you wrote this blog, Australia was already using the Minimed 512s, not the 508 as you say. I'm not sure where you got this information.
I live in Australia btw, and am pumping, thats how i know :)
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Doctor's just jam up their schedules so full they lose sight of the fact that people do need a little individual attention; it's sad.
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